Amanda has two children who have eczema.  In babyhood this was quite severe but as teenagers they are now only mildly affected.  Amanda has had moderate eczema all her life.  She was a patient carer representative on the committee which prepared the National Institute for Health and Clinical Excellence (NICE) Guidelines for Childhood Eczema. Links to these guidelines can be found on our Information Leaflets page. Amanda has been involved in the support group now for many years and should you wish to contact us, she is the person that will respond in the first instance. She also has direct access to Professor Williams and Sandra Lawton if she needs to get expert opinion.

Last autumn as a member of the Centre for Evidence Based Dermatology patient panel Amanda was asked if she might want to be on the Steering Panel of the UK Dermatology Clinical Trials Network (UK DCTN) since their patient representatives  were standing down. Amanda has been a patient representative on several committees and groups (the NICE Guideline for children with eczema, the East Midlands Research for Patient Benefit panel, HTA Clinical Evaluation and Trials Prioritisation Group and Asthma patient research panel), so it seemed appropriate for her to volunteer. She has also been accepted for the patient representative position on the Nice Guideline for food allergy in children. This is great because it means that the NSGCCE as a Stakeholder Organisation will also be at the table during the discussions that will be the basis of the guideline.

Please note that Amanda cannot make appointments on your behalf nor can she pass on specific medical advice as she is not medically qualified to do so. As a sufferer herself and as a mother of children with eczema, the experience she has gained over the years will enable her to help you get to the treatment your child needs. Our web site and other services DO NOT replace the normal GP route for treatment.