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Building and Understanding the Patient’s Journey
At the March meeting 2005, the group got involved with a project that looked at the route or pathway that patients took to get primary healthcare for their children. The project looked at the experiences individuals had, from a child first having an eczema symptom at home to accessing help locally e.g. GP or health visitor, through to accessing specialist care in the hospital children’s out-patient department.
Who's involved? Annette Kitchin is supporting Sandra Lawton in the development of the paediatric eczema pathway. This is work that links to the Integrated Children's Network working across Nottinghamshire. Annette works as Care Pathway Coordinator across the Trust in the Service Improvement Team (Queen's Medical Centre University Hospital NHS Trust), but does have a special interest in paediatrics as she is also a registered Children's Nurse. Annette's work involves working directly with clinical teams to improve their patient's journey and to achieve a high quality, safe, efficient and evidence-based pathway, aiming for the best possible outcome for our patient's and their families.
What has been happening? One of the key pieces of work that needs to happen to improve the patient/family pathway, is working in collaboration with patients and families, so that our knowledge and experience is captured and taken forward , therefore directly influencing and informing how services can be improved and shaped in the future.
This is why Annette with Sandra, have been gathering the views of the Nottingham Support Group for Carers of Children with Eczema. This work over 3 meetings in March, May and September 2005 is helping to identify what happened on our children’s journey - things that could have been done better, where long waits occurred, when the right information that we needed by the right healthcare professional was not given and equally when things went well that we would like to see other families experiencing and that should be keep in the pathway.
What happens next? This is only the start really! We would like to hear more views on how the pathway should be improved. The results of a survey that we have just completed are being analysed, This information will be used to develop a new care pathway for children with atopic eczema
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The specialist nurses and doctors with the Nottingham Support Group for Carers of Children with Eczema, will continue to work together to agree how this pathway should look to best meet the needs of children and their families. This work will be proposed for discussion and action at the Integrated Children's Network, who are reviewing and developing Children's Services.
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