NSGCCE Email Alert Service - Web Copy
Welcome to the Nottingham Support Group for Carers of Children with Eczema
Email Alert Service. The service is intended to bring to your inbox any new information
as soon as we get it. It will also be a way that subscribers can be kept abrest
of any changes to our website, blog or RSS Feed without specifically going to
those other services. If there are any topics that you would like to see
discussed or if you have any feedback on any aspect of NSGCCE then please let
us know. Email your comments to webmaster@nottinghameczema.org.uk
or use the “Contact
Us” page on the website.
Contents
New Helpline Number For The
National Eczema Society
Entry From The National Library Of Health Specialist
Library Update – January 2008
Eczema Still On
The Increase In Developing Countries
Atopic Eczema in Children –
Clinical Guideline from N.I.C.E.
The UK Dermatology Clinical Trials Network (UK DCTN)
New Helpline Number For The National Eczema Society
Web address : http://www.eczema.org/
The National Eczema Society helpline has new contact details. To talk to
someone at the society call 0800 089 1122. The helpline is open from Monday to
Friday 8am to 8pm or you can email them at helpline@eczema.org or you can write to The National Eczema Society, Hill House, Highgate
Hill, London, N19 5NA
Entry From
The National Library Of Health Specialist Library Update – January 2008
Web address : http://www.library.nhs.uk/
+02. Cochrane Review - Dietary exclusions for established atopic eczema
http://www.mrw.interscience.wiley.com/cochrane/clsysrev/articles/CD005203/frame.html
Conclusion: “There may be some benefit in using an egg-free diet in infants with
suspected egg allergy who have positive specific IgE to eggs. Little evidence
supports the use of various exclusion diets in unselected people with atopic
eczema, but that may be because they were not allergic to those substances in
the first place. Lack of any benefit may also be because the studies were too
small and poorly reported. Future studies should be appropriately powered
focusing on participants with a proven food allergy. In addition a distinction
should be made between young children whose food allergies improve with time
and older children/adults.”
Web address : http://www.nottinghameczema.org.uk/advisory.html
The NSGCCE website has a page
dedicated to advisory notices which are received from government and other
authorised agencies. Currently there are two advisory notices in place. They
are:
a. Fire
Hazard with Paraffin Based Skin Products from the National
Patient Safety Agency (NPSA)
b. OSAS (Intensive Body Lotion with Aloe Vera) found to contain steroids
from the Medicines and Healthcare products Regulatory Agency
The National Patient
Safety Agency is part of the Patient Safety Division of the NHS
The Medicines and Healthcare products
Regulatory Agency (MHRA) is the government agency which is responsible for
ensuring that medicines and medical devices work, and are acceptably safe.
Eczema Still On The Increase In Developing
Countries
The following is a link to the press
release page of the University of Nottingham. It details research done by Professor Hywel Williams, Professor
of Dermato-Epidemiology and head of the Centre of Evidence-Based Dermatology at
The University of Nottingham. Professor Williams, who led the eczema research,
says eczema needs to be tackled at a public health level in many countries. New
research tracking the number of cases of childhood eczema across the globe has
revealed big changes in the prevalence of the condition over the last five to ten
years and suggests that environmental factors could be having a significant
impact. (http://www.nottingham.ac.uk/public-affairs/press-releases/)
Web address : http://www.nottinghameczema.org.uk/previousmeets.html
As a result of
the progressive development of the eczema website and the readily accessible
information through the internet, the attendance levels at the bi-monthly
meetings have fallen dramatically. It is with this in mind that the decision to
discontinue these meetings with immediate effect has been taken. It is the intention to have some meetings
during the year but the format has yet to be decided. We would welcome any
ideas that you may have as to what they should be replaced by. If you have any
ideas for content of these newsletters or indeed the website then please let us
know about those as well. All communication should be sent to webmaster@nottinghameczema.org.uk. We should like to thank all those of you who
have attended the meetings over the years, for your support and input. It has
been appreciated. We will continue to update the website with any new
developments as and when appropriate.
Currently there
are several ways that you can receive information:
1.
The
website itself (www.nottinghameczema.org.uk),
there is a wealth of information including many information sheets in a pdf
format that can be downloaded and printed when ever you want.
2.
The
Blog (Click on the large letter B at the top left of our
home page. It is intended to be an informal place where stories can be told.
Full accreditation will be given, however please read all the conditions that
will be applied at http://www.nottinghameczema.org.uk/blogs/archives/cat_blogintro.html.
3.
The
RSS news feed. Just click on the orange RSS symbol again
located at the top left of the home page and the inbuilt news readers will kick
into life and format the feed for you. If nothing happens then you are probably
using an earlier version of your favourite browser and you may need to download
one of the great and the good news readers freely available on the internet.
Our news feed has been tested on these browsers: Internet Explorer 7, Firefox
version, Safari for Windows 3.1 and Opera 9.26.
4.
The email alert service. By subscribing to the service you will receive these newsletters and
other communications directly to your inbox as and when information becomes
available. For full details of the service and conditions go to http://www.nottinghameczema.org.uk/mailalert.html.
Web address : http://www.nottinghameczema.org.uk/nations.html
Our website has been used by people
from 85 countries and territories around the world, from Algeria to Zimbabwe.
Some of the more unusual visits have been from The Heard and McDonald Islands,
Tokelau, The Turks and Caicous Islands and Vietnam.
The top 10 users are:
Country Visits
During 2007
UK 18287
Australia 1510
Canada 888
Italy 407
Sweden 374
Germany 346
Netherlands 344
New
Zealand 289
France 278
Malta 266
Our current batting averages for 2007
are 19.92 hits per hour and 489.17 hits per day. This volume of traffic has
been maintained now for the last 3 years.
We have two known doctors’ practices
whose websites directly link in to ours. One of these is in Nottinghamshire and
the other in Wales. The top 25 referrers are the search engines, predominately
Google with the National Eczema Society coming in at 21 and 22.
Atopic Eczema in Children – Clinical Guideline from
N.I.C.E.
The NICE clinical guideline for
children with atopic eczema was published in December 2007 under Reference
CG57. This describes the management of atopic eczema in children from birth up
to the age of 12 years. To review the guidelines please follow the link www.nice.org.uk/guidance/index.jsp?action=byID&o=11901.
The UK Dermatology Clinical Trials Network (UK DCTN)
The aim of the UK Dermatology
Clinical Trials Network (UK DCTN) is to conduct high-quality, multicentre, randomised controlled trials (RCTs) that answer questions of importance to clinicians and
patients. It is a collaborative network of dermatologists, dermatology nurses,
health services researchers and patients throughout the UK and Southern
Ireland. If you have an interest in becoming involved in dermatology clinical
trials click here to download
the information leaflet or visit their website at www.ukdctn.org
Thank you for your continued
support. If you would like to pass this on to a friend or family then please
do. However to get their own copy they must register though the website at www.nottinghameczema.org.uk/mailalert.html
From the Team at the
NSGCCE
http://www.nottinghameczema.org.uk/
While every effort is made to ensure the accuracy and quality of the
information provided in this email, any opinions expressed should NOT be taken
as an endorsement of that opinion by the Nottingham Support Group for Carers of
Children with Eczema (NSGCCE).
If you intend to apply any of the knowledge gained from this email without
independent specialist medical advice, then you do so at your own risk. No
responsibility will be accepted for any adverse condition encountered as a
result. This service is intended for the United Kingdom only.